The author asks us sufferers the following...
"Life changes when you get arthritis. Whatever your life was like before arthritis, it's undeniable that your illness becomes a big factor in all you'll do going forward. Yes, it's a factor, but how much of a factor? Does each patient decide that for himself or herself -- or does arthritis decide? Think about it."
For me (as someone who has only recently been dealing with this disease) it is hard to say how much of a factor arthritis plays in my life.
I mean most people I see from day-to-day have no idea I have PA, but to be completely honest, I think this is because I don't want them to know. So therefore PA is restricting me in the aspect of not being completely honest about myself, but is that level of honesty neccesary? Should I just walk up to people and say "Hi my name is Kristy and I have Psoriatic Arthritis?" No. Not at all. It is difficult because I do not want to know how people will react (will they treat me differently?), but mostly I just fear that I will starting living my life like PA defines me.
It's a complete paradox; "Do not judge me for fear that I may judge myself", and maybe I do, I don't feel ashamed, and I certainly do not use PA as an excuse to not live life (hence past adventures like skydiving and future endeavors like hiking in Jamaica). I have an active lifestyle, and high self-esteem, but this whole "having a disease" thing just seems so strange to me. It is as though I still do not believe that the daily pain I have could possibly be arthritis. That, and the fact that I am not comfortable with "help"; something I am sure will have to change as I get older. Along the same lines, the thought that anyone might pity me makes me feel physically ill. I am independent, and I have always liked that about myself, but what do I do when I am being forced to face the reality that I might need help in the future?
Maybe this blog will help me figure it all out, but, for now, all I am certain of is that just thinking about these types of questions is a good thing.
1 comment:
Taken from Vavavavegan...
hima said...
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Hope for the best
12/4/08 3:55 AM
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